Consumer involvement

Empowering research through consumer voice: Andrea Pinto’s story

Consumers are supporting us by providing a patient, carer and community perspective through membership on committees that govern our practices and strategic direction in research.

The Cabrini Research Committee (CRC) and Scientific Advisory Committee (SAC) are responsible for guiding and advising on governance, risk and research strategy for Cabrini Research and Cabrini Health. The CRC acts as Cabrini Board’s principal advisor on Cabrini’s research strategies, oversees the conduct of Cabrini Research, and governs and oversees the conduct of research across Cabrini Health. The SAC duties and responsibilities include advising strategic direction of research, identifying opportunities and facilitating collaborations at other institutions, provision of peer review for programs and projects, and assessing and evaluating the quality of research at Cabrini.

The Cabrini Research Governance Committee (CRGC) reports to the CRC and convenes monthly to:

• review and approve new research projects
• monitor the conduct of all active research to ensure it affirms Cabrini’s mission and values and the teachings of the Catholic Church, and complies with the National Statement for Ethical Conduct in Human Research (2023) and other regulatory requirements
• oversee the implementation of and compliance with the National Clinical Trials Governance Framework (NCTGF)

Research departments at Cabrini Research engage consumers as partners, advisors and participants in their research programs and projects.

Visit the research department webpage to see how consumers are contributing to new discoveries and advances in healthcare. Learn more about the research being undertaken at Cabrini to find something you wish to be involved in.

Consumers are supporting us by providing a patient, carer and community perspective through membership on committees governing our practices and strategic direction in research.

The Community Advisory Committee comprises equal numbers of Cabrini Staff and consumers who partner with the organisation to improve the customer experience through determining the needs, concerns and priorities of patients, families and their carers.

The Cabrini Research Consumer and Community Involvement Committee are a group of consumers with experience in research participation. They may assist with setting research priorities, co-design of protocols, sharing their stories, and providing tips on improving research outputs. They are helping our researchers make discoveries.

Consumer guide for partnering in research

Cabrini partnering with consumers in research guide for consumers

Researcher guide for partnering with consumers in research

Cabrini partnering with consumers in research guideline for researchers

Monash Partners—working together to have a bigger impact

Cabrini is a founding member of Monash Partners Academic Health Science Centre, a partnership between 12 healthcare, research and teaching organisations serving a community of 2.5 million Victorians. Established in 2011 and accredited in 2015 by the NHMRC as an Advanced Health Research Translation Centre, the purpose of Monash Partners is to “Connect researchers, clinicians and the community to innovate for better health”.

Monash Partners fully supports the involvement of healthcare consumers and the community in research, healthcare improvement and innovation. On their website you can find information about consumer and community involvement training, consumer involvement resources, advice and support.

Visit Monash Partners website

Consumer and Community Involvement Handbook

The Western Australian Health Translation Network has created an essential resource for organisations, researchers, consumers and funders who are serious about consumer involvement in health research.

Western Australian Health Translation Network Consumer and Community Involvement Handbook